Our kids have been rather ill for the past two weeks. Our daughter, especially, didn't have an appetite.  That's no surprise for a ...

   Bookscoops encouraged others to read books about epilepsy or to share their own story today.  I first learned about this post from Goo...

A while back I got the book Good Morning, Beautiful: Winning the Battle Over Seizures .   It was an incredibly emotional book, but more impo...

Our son, E, has been taking medication twice a day since his seizure in October. You might say that we have had a fight twice a day becau...

We recently went through a bout of the kids being sick.  Stomach illness.  We've gone on to just having colds...not so bad!   Warning : ...

I shared this on our family blog, and wanted to share it here too. So I guess three years ago (to the day on November 3rd) our lives were ...

Just a very quick note to let you know we made it home. E is not taking bottles well (especially formula/milk), but he is mostly willing to...

M, our 3 year old and E both have hand, foot, mouth disease (not related to the seizure). The doctor M saw has said she's no longer cont...

Yesterday afternoon E started on clear fluids and then got to have formula and applesauce. Around 10PM we were taken from the PICU and sent...

It was a rough night. I think we had about a two hour stretch at one point. E is really upset when he's awake. And he's hungry. The ...

Just a quick note to share that the breathing tube is out! That also means he is sometimes "awake" though his eyes are closed. H...

Not the normal post, but I consider my readers my friends... We are at AI DuPont Children's Hospital with our son. (For those of you wh...