This is a bit emotional...filled with gratitude and amazement at what God has done. I shared this on our family blog, but want to share it with my friends here, too.
In February of 2009 (at age 27 months) M was diagnosed (not just suspected) with verbal dyspraxia (also know as apraxia). You can read my original post
here, if you like. Her therapist suspected apraxia, and after reading about it (which was incredibly hard) and clearly seeing the signs for myself, I scheduled a formal evaluation through AI DuPont Children's Hospital. So it was over a year ago that she was diagnosed with it.
In short, dyspraxia/apraxia is a neurological disorder that affects communication (and often movement). It is not outgrown, nor is it a muscle issue. Instead, the brain is not able to tell the muscles what to do. You can read more about dyspraxia/apraxia at
www.apraxia-kids.org, if you like.
I knew something was different about M as a baby. She didn't babble. Not even at age 1. She did not have throaty sounds...her only sound was mmm-mmm when she was eating. (She still does this a lot of the time at 3 1/2.) Though she giggled and laughed; that and crying were her big ways to communicate. Most people tried to encourage me/us telling us about how children learn to walk when they are one and talk when they are two or how lots of kids are late talkers (like myself), and then start talking in sentences. Many thought we were crazy to teach her sign language to facilitate communication since she would use signs but not words. Some thought we just didn't try.
After several months of therapy without much change, when M was 27 months old, she was diagnosed with verbal dyspraxia along with a few other things. When I was researching about apraxia I cried-after just five minutes of reading. At its worst it's horrible, and doesn't only impact speech. Often children with it have a very difficult time in the classroom, especially with math and reading. I'm certain my emotions were no different than any other parent who has a special needs child...mild or severe. With M's diagnosis, I was able to request additional therapy for her at home. She went from once a week therapy to twice a week with an SLP and a once a week teacher visit. Both the SLP and teacher were excellent, and I truly believe what they did with her (and taught my husband and I to do) made the biggest difference. We understood we were our child's advocate and what we did with her was incredibly important.
By age three, M still could not say a nursery rhyme or sing happy birthday, but her progress was remarkable. Her vocabulary always growing. She was attempting words on her own, unprompted! Her birthday brought sad changes though. We said goodbye to her teacher and therapist which was really hard.
The day after her birthday we sent her to a special needs preschool with a speech and language classroom through the Intermediate Unit. Oh, and our little girl rode a school bus, complete with car seats. Our social little girl blossomed at school where she was not only in a classroom with an SLP for a teacher, but she was also working with another SLP three times a week.
Recently, the teacher and SLP let us know that M would benefit from being in a regular classroom next year for both speech and academic reasons. (She is at the top of her class with both.) But this week I spent some time talking to her SLP at school.
From her evaluations, M is speaking age appropriately! Though many three year olds sound like little adults when they speak, it is not actually expected that a three year old would have all, or even most, of the sounds used when speaking. Not only that, but the SLP has also said that she no longer sees signs of apraxia.
What does this mean? In my opinion, the fight is not over, but WOW! M has overcome the apraxia for now. She will continue to need therapy, likely for many years. However, her speech doesn't need to define her. (I know that this is more my issue than hers!) When she goes to regular preschool in the fall, she will continue with therapy. I don't know if it will need to be intensive, like in the past, but it will continue. Obviously, her apraxia is fairly mild, but it still excites me to think where she is compared to where she has come from!
M continues to be difficult to understand, especially with multi-syllable words. But we do understand a lot. Her vocabulary is huge. She retains information amazingly well. As her SLP said, she learns really well (better than others her age) from her experiences and environment (watching others, books, television), and does not need to be instructed in many things to understand them.
Derek and I have prayed for her speech, just like we prayed about
her SVT, and
Evan's seizures. To God be the glory! We know that M's hard work through early (and intensive) intervention and people that care have been used by God to help her in this journey...and He will help us through the next part, too!
(Please note that I spoke mostly using the words I/me in this post because I was speaking from my perspective and my emotions. Derek has been extremely involved in all of this, too. Though it was not as natural for him at first, he has learned to facilitate speech in both of our children that would please any SLP.)
September 2011 Update
M is nearly 5. She is no longer in speech therapy, though at times she still has difficulties with a sound or word. She loves to talk and sing. Often she makes up new words to familiar tunes. Despite the way that some apraxics struggle with reading, M (a preschooler) is reading on a kindergarten to early first grade level. (Levels 1 and 2 in easy readers.) Most would not suspect her speech history if they heard her speak! She does not sound like a little adult, however, she does sound like a typical four year old. We are grateful!!
If you are looking for some
speech activities for your child, click the link for some of my tips or explore the speech tab at the top of this post.